Uncommon Challenges; Shared Journeys: Stories of Love, Hope, and Community by Rare Disease Caregivers

Name: Uncommon Challenges; Shared Journeys: Stories of Love, Hope, and Community by Rare Disease Caregivers
Author: Wendy White, Catherine Calhoun, Jordana Holovach, Janis Marie, Laura Buchanan, Matt and Lori Sames, Julie Loeffler, Terri Granard, Dominique Friend, Bill and Nicole Morris, Joan Bellontine, Dayna Fladhammer, Pat Furlong
ISBN: 9780615445557

Author Wendy White, Catherine Calhoun, Jordana Holovach, Janis Marie, Laura Buchanan, Matt and Lori Sames, Julie Loeffler, Terri Granard, Dominique Friend, Bill and Nicole Morris, Joan Bellontine, Dayna Fladhammer, Pat Furlong

Publisher Siren Press

Category Orphan drugs

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Book Details

Author(s) Wendy White, Catherine Calhoun, Jordana Holovach, Janis Marie, Laura Buchanan, Matt and Lori Sames, Julie Loeffler, Terri Granard, Dominique Friend, Bill and Nicole Morris, Joan Bellontine, Dayna Fladhammer, Pat Furlong

Publisher Siren Press

ISBN / ASIN 0615445551

ISBN-13 9780615445557

Availability Usually ships in 24 hours

Sales Rank #2,880,526

Category Orphan drugs

Marketplace United States 🇺🇸

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Description

This is a book about everyday heroes. Each moment of their lives, caregivers of children with rare disorders are waging a battle to give their children life, health and hope for the future. They're looking for answers, raising money for research, running interference with healthcare institutions, nurturing their children and hoping against hope for a cure. In this collection of inspiring and sometimes heartbreaking stories, you'll discover what it's like to take this journey. All profits from this book will be donated to the charities selected by each of its authors.