The Official Parent's Sourcebook on Phenylketonuria

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to phenylketonuria, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on phenylketonuria. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Phenylketonuria: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Phenylketonuria; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Phenylketonuria; Chapter 5. Patents on Phenylketonuria; Chapter 6. Books on Phenylketonuria; Chapter 7. Multimedia on Phenylketonuria; Chapter 8. Periodicals and News on Phenylketonuria; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Phenylketonuria; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child's Rights and Insurance; ONLINE GLOSSARIES; PHENYLKETONURIA GLOSSARY; INDEX. Related topics include: Classical Phenylketonuria, Folling Syndrome, Hyperphenylalanemia, Hyperphenylalaninemia, Phenylalanine Hydroxylase Deficiency, Phenylalaninemia, Phenylpyruvic Oligophrenia.