How I took control of Lichen Sclerosis, and stopped it controlling me: A self-tested, self-help guide and solution: from one sufferer to another
Book Details
Author(s)D. A. Lewis
PublisherD. A. Lewis
ISBN / ASINB00PJ52UDG
ISBN-13978B00PJ52UD1
Sales Rank559,268
MarketplaceUnited States 🇺🇸
Description
Imagine wanting to rip off your own skin. Tear it away from the flesh that holds it in place, hour after hour, day after day, and night after night.
Lichen Sclerosus has tormented me for more than 20 years. My Mother has had it for over 40. My Grandmother had it for at least another 20 on top of that. She kept it a secret, until it was too late.
It is the most relentless, merciless, soul-destroying nightmare you can imagine.
But I found a way through it. It no longer controls me. And I will tell you everything I did to come out the other side. I now live a normal, pain free, scratch free, life once more.
And if I can do it, so too can you.
In response to the following comment on Amazon:
‘Not advice that I was expecting’
I feel I should clarify what my book is about, and to whom it is aimed at. First, I have had Lichen Sclerosus for a very long time, please be in no doubt about that.
And in all those years of suffering, I took way too many things for granted; I drank too much, I smoked too much, I didn’t do enough exercise, and many, many more things that were bad for me (and I knew they were bad for me).
So when I finally set out on my journey to better myself, my motivation for doing it was simply self-concern over my forties and taking care of myself better, not LS. These were things like my weight, my alcohol consumption, my lack of fitness, and my diet, etc.
The benefits that came as a result of this improved my LS symptoms, and my ability to control it, immeasurably. But it was an unexpected bonus, not what I setout to do initially.
Was I reaching too far when I thought ‘There must be others out there who are just like me; they drink too much, smoke too much, don’t do enough exercise, take too many of the LS symptoms for granted?’
I didn’t think so then, and I still don’t now. In fact, I have received some wonderful comments from people who have been very open about their own issues, issues that are very similar to the ones I took for granted. And all comments I have received so far are from women.
Ah yes, I should also clarify that I am a man. You may have noticed in my book that this part of me is vague. This was deliberate (there are a couple of clues in there if you look), because I did not want you to read my book with any preconceptions about whether this book was for men or women. It is for both. None of the issues I talk about are gender-dependent.
The biggest surprise for me was that when I started being better to myself, things really, really improved, all over, and in many more ways than just improving my LS symptoms.
About the tone of my book:
Isn’t it nice to feel ‘uplifted’ by something you read? That’s what I hoped to achieve. I know what it feels like to talk about Lichen Sclersosus. I have had more conversations than I can recall about this subject over 20 years; with my Mother, Doctors, Skin Specialists, other sufferers. It is not a subject I particularly enjoy talking about. It can often be dour and depressing and quite shocking. I was verging on depression over my own condition for many years, and it took me a long time to sum up the courage to write openly about it.
But this is why I wrote the book in the spirit that I did. It is meant to be uplifting and hopeful. It is meant to help people who are like I was, to recognize the things that many of us take for granted, because the potential improvements to the LS symptoms might just surprise you.
I know because I still have LS but the way my symptoms are now compared to how they used to be are incomparable.
If your body has always been your temple, this book is probably not for you.
Lastly, thanks for pointing out the spelling error in my book. It is indeed spelt ‘Elocom’, with the letter ‘m’. This was an oversight on my part and I will correct. For your benefit, I have posted a picture of my Elocom tube on my web site. I guess I could take it next to a newspaper with the date next to it, if you need.
Best wishes
D A L
Lichen Sclerosus has tormented me for more than 20 years. My Mother has had it for over 40. My Grandmother had it for at least another 20 on top of that. She kept it a secret, until it was too late.
It is the most relentless, merciless, soul-destroying nightmare you can imagine.
But I found a way through it. It no longer controls me. And I will tell you everything I did to come out the other side. I now live a normal, pain free, scratch free, life once more.
And if I can do it, so too can you.
In response to the following comment on Amazon:
‘Not advice that I was expecting’
I feel I should clarify what my book is about, and to whom it is aimed at. First, I have had Lichen Sclerosus for a very long time, please be in no doubt about that.
And in all those years of suffering, I took way too many things for granted; I drank too much, I smoked too much, I didn’t do enough exercise, and many, many more things that were bad for me (and I knew they were bad for me).
So when I finally set out on my journey to better myself, my motivation for doing it was simply self-concern over my forties and taking care of myself better, not LS. These were things like my weight, my alcohol consumption, my lack of fitness, and my diet, etc.
The benefits that came as a result of this improved my LS symptoms, and my ability to control it, immeasurably. But it was an unexpected bonus, not what I setout to do initially.
Was I reaching too far when I thought ‘There must be others out there who are just like me; they drink too much, smoke too much, don’t do enough exercise, take too many of the LS symptoms for granted?’
I didn’t think so then, and I still don’t now. In fact, I have received some wonderful comments from people who have been very open about their own issues, issues that are very similar to the ones I took for granted. And all comments I have received so far are from women.
Ah yes, I should also clarify that I am a man. You may have noticed in my book that this part of me is vague. This was deliberate (there are a couple of clues in there if you look), because I did not want you to read my book with any preconceptions about whether this book was for men or women. It is for both. None of the issues I talk about are gender-dependent.
The biggest surprise for me was that when I started being better to myself, things really, really improved, all over, and in many more ways than just improving my LS symptoms.
About the tone of my book:
Isn’t it nice to feel ‘uplifted’ by something you read? That’s what I hoped to achieve. I know what it feels like to talk about Lichen Sclersosus. I have had more conversations than I can recall about this subject over 20 years; with my Mother, Doctors, Skin Specialists, other sufferers. It is not a subject I particularly enjoy talking about. It can often be dour and depressing and quite shocking. I was verging on depression over my own condition for many years, and it took me a long time to sum up the courage to write openly about it.
But this is why I wrote the book in the spirit that I did. It is meant to be uplifting and hopeful. It is meant to help people who are like I was, to recognize the things that many of us take for granted, because the potential improvements to the LS symptoms might just surprise you.
I know because I still have LS but the way my symptoms are now compared to how they used to be are incomparable.
If your body has always been your temple, this book is probably not for you.
Lastly, thanks for pointing out the spelling error in my book. It is indeed spelt ‘Elocom’, with the letter ‘m’. This was an oversight on my part and I will correct. For your benefit, I have posted a picture of my Elocom tube on my web site. I guess I could take it next to a newspaper with the date next to it, if you need.
Best wishes
D A L
